Patient Voices: Real Stories. Real Growth.
Every journey matters — and every story has the power to spark change. Patient Voices is a space where children, teens, and families affected by Growth Hormone Deficiency and rare genetic disorders can share their experiences.
Whether it's navigating a difficult diagnosis, starting treatment, or learning to embrace what makes us different — these stories remind us that we’re not alone, and that hope grows stronger when it’s shared.
Scroll down to meet real patients, read their journeys, and see the impact your support can make — one child, one story at a time.
Stories from Patients
Share Your Video or Written Story
Start Helping Others by Sharing Your Story
Living with Growth Hormone Deficiency or a rare genetic disorder can feel isolating — but your story can make someone else feel seen, understood, and hopeful.
Whether you’ve gone through treatment, are just starting your journey, or have supported a loved one through theirs, your experience matters. By sharing it, you help raise awareness, inspire others, and show families they’re not alone.
Send your written story, a video, or even a message of encouragement to
aidan.kincaid@teenstogether.org
We’ll do our best to feature your voice on our site.
Let’s build a community where every child has the chance to grow — and every family has the strength to keep going.